Ever since the beginning of the pandemic and the first mention of vaccine development, there has never once been a doubt in my mind about whether or not I would take it when available to me––of course I would get the shot to protect myself and those around me.
That decision may not seem noteworthy to most, but for me, as someone with a neuroimmune condition that can be triggered by vaccines, many people would say I had every reason not to get vaccinated. But considering only the theoretical risk of a vaccine without considering the benefits is short-sighted and irrational.
Continue reading “My Experience with the Moderna COVID Vaccine as a Neuroimmune Patient”
Why would this happen? How could I get worse while getting treatment?
Years ago when I started this blog, every time I had a symptom flare-up, I’d ask myself these questions over and over again sure that if I thought about them hard enough it would all make sense.
Unfortunately, when you have an illness which science has only recently begun to understand, you rarely get the satisfaction of knowing why you’ve gotten sick and what exactly will work to get you better. Sure, well-established, proven guidelines for diagnosing and treating PANS exist (though they didn’t when I started), but all too often, I relapsed without knowing why and had no objective test to prove how sick I was; I’d lose my entire personality, but the autoimmune markers you might expect in someone suffering from brain inflammation never showed up.
Continue reading “Could This Antibody Be Stealing My Life?”
“Choose one,” the masked man growled as I stood in the doorway, frozen in fear. “It’s either the painting or the pearls.”
I tried to get the words out, but the mere sight of the crowbar in his hands and the open window had already stolen my voice. I reached for my purse to find my phone, not daring to lose eye contact, but before I could call 911, he whisked out a lighter from his back pocket.
“You have five seconds to pick one or I’ll burn the whole place down instead.”
Continue reading “The Criminal No One Can Stop: When Illness Is a Crime Scene”